In the Fight
A few weeks have passed since your child’s diagnosis, and now you're discovering resources to assist in various aspects of your battle. Alongside MyDIPG Navigator, there are tumor boards at your disposal. Seeking a second opinion might unveil more tailored options, adding hope to the journey.
Get Guidance from Trained Nurses
As you navigate this journey, you might seek direction on your next steps. My DIPG Navigator links you with experienced pediatric oncology nurses. They'll help you grasp the diagnosis, treatment choices, and connect you with the right resources. They'll stand by your side throughout your fight.
Connect with the DIPG DMG Community
Connecting with fellow families battling the same challenges can provide immense support. Discover resources that others have found beneficial and share your own insights. The Tough2gether community is a private space created by parents who've been through this fight, exclusively for DIPG DMG families like yours.
Learning To Live With DIPG DMG
You have a new normal that you have to navigate. Your head is filled with various doctor appointments, clinical trials and treatment options. Finding balance for yourself and the rest of your family is important. We have gathered advice from families who have gone down this road before you.
Connecting you to Trusted Resources
Tough2gether Online Community
During your fight, you may want to connect with other families going through this battle, learn what resources other parents found helpful or share those helpful to you. Join a private DIPG DMG community founded by DIPG DMG parents.
My DIPG Navigator
Connect with nurses with years of experience in pediatric oncology to help you better understand the diagnosis and treatment options, connect you to the proper resources you need, and support you throughout your fight.
DIPG DMG National Brain Tumor Board
Receive a second opinion for treatment unique to your tumor from a national panel of leading pediatric neuro-oncologists, neuroradiologists, genomics experts, and neurosurgeons selected from centers of excellence across the country.
Live Brave 2gether
We know that in addition to worries about your family member, there are financial worries that accompany a diagnosis of DIPG or DMG. Live Brave 2gether is founded by families who understand and help find options to relieve the inevitable financial strain.
xINFORM stands ready with a well-recognized system to compare your patient data, as you receive it, with other DIPG DMG patients’ data and published research relevant to your tumor. Use xINFORM to assist in the decisions for treatment you will make.
Children’s Brain Tumor Network is a federated data and tissue repository partnering with centers of excellence throughout the world to receive patient data and tissue of pediatric brain tumor patients. By collaborating, researchers using CBTN data can often accelerate discoveries in their work for a cure.
Centers of Excellence
DIPG DMG centers of excellence are hospitals that specialize in caring for children or adults with DIPG and DMG, including access to clinical trials, specialists to guide your loved one’s care, and knowledge of side effects to be treated with complimentary care on the cutting edge of research.
Gift From A Child
Connect with a parent or navigator who has been in your shoes to answer your questions and to assist you in deciding to donate tissue in order to fuel research in DIPG DMG. Gift from a Child partners with the top medical teams who value sharing information and patient data to accelerate cures.